Blogger: pat --- Title: ccsvi webcast --- Posted: Jun 3rd 2010, 1:02 pm
anyone watch the ccsvi webcast on the mss uk website? interesting meeting and appears there would be a lot of volunteers to try this treatment
Comments
I've had a look, pat. But after reading some of the reports I'm not sure I would want to chance that stent thing - at least until they know more about the whole thing.
I agree with Pat, I have watched the CCSVI webcast on the MSS UK website and found it really interesting althought I was disheartened by some of the 'professionals' dismissive responses.
I am not sure I would chance a stent in my veins at the moment, but only because not enough is not known about it and of corse no clinical trials...and it seems no real rush or pressure on government/MS Society to look further into this.
I would, however, definitely like to have my veins 'checked'. An easy, cost effective and non-invasive proceedure just to even test the theory of are our veins blocked or not?! Such a simple test involving ultra sound/scan and we would get a simple yes or no answer.
We definitely need to get the CCSVI theory in to the minds of our poiticians and health care workers and really start making a push for this. I for one am in a rush to have the simple 'check' test for this potentially life enhancing treatment, but until more people speak out and request the check then nothing will be done! We must take control and empower ourselves.
MSFoyle Blog 
I've had a look, pat. But after reading some of the reports I'm not sure I would want to chance that stent thing - at least until they know more about the whole thing.
Posted by beaver --- Jun 4th 2010, 12:21 pm
---------------------------------------------------------------What about the blocked vein tests, can't be too dangerous and would be interesting to know the percentage of pwms who have ccsvi
Posted by pat --- Jun 13th 2010, 12:18 am
---------------------------------------------------------------I agree with Pat, I have watched the CCSVI webcast on the MSS UK website and found it really interesting althought I was disheartened by some of the 'professionals' dismissive responses. I am not sure I would chance a stent in my veins at the moment, but only because not enough is not known about it and of corse no clinical trials...and it seems no real rush or pressure on government/MS Society to look further into this. I would, however, definitely like to have my veins 'checked'. An easy, cost effective and non-invasive proceedure just to even test the theory of are our veins blocked or not?! Such a simple test involving ultra sound/scan and we would get a simple yes or no answer. We definitely need to get the CCSVI theory in to the minds of our poiticians and health care workers and really start making a push for this. I for one am in a rush to have the simple 'check' test for this potentially life enhancing treatment, but until more people speak out and request the check then nothing will be done! We must take control and empower ourselves.
Posted by JBo --- Jun 15th 2010, 3:23 pm
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